Had a good, long night! Kalle's epilepsy is much better today, compared to yesterday. I found out why the night before was so bad: We mix Kalle's meds - including sleeping meds - with a bit of nutrition. The sleeping meds usually come in a small capsule that we empty into the bottle. But in the hospital we get the med in a syringe, dissolved in some water. Yesterday I noticed that the med (a white powder) hasn't been dissolved at all....the biggest part of the powder just stayed in the syringe and didn't go into the bottle. So I guess Kalle didn't have any sleeping medication at all....which explains why he didn't sleep....which explains why he had so much more epileptic activity. *sigh* Pretty stupid that such a simple, practical thing causes so much trouble.
Program for today: ECG and a visit to the Snoezelkamer:
In the afternoon Jan and I are going to the hospital where Kalle is born. And where everything started. We're going to talk to one of the gynecologists to get some answers. It's a long story some of you know. If you don't: I might explain everything another time. It comes down to the question: If we had known certain things at the right time, would Kalle be sick now? This appointment might be the beginning of a long complaint procedure.
To be continued....