The last two days were a nightmare. Kalle's epilepsy is getting out of hand. Today he had so many small seizures that counting them was impossible. He's sleeping now, after two hours of constant crying, fear in his eyes and lots and lots of muscle jerks: arms, head, sometimes legs. Calling the hospital in the evening isn't a good option because Kalle's neurologist only works during the day. There is always another (assistant) neurologist present, but most of the times it's someone who doesn't know Kalle, his medical history. So we'll wait until the morning. What the neurologist will suggest....we don't know. This situation is unacceptable. But trying another med...We'll see.
It's sad, so sad.